Monthly Archives: June 2012

3F8 Round 1 – Over and Done

Well…we are done with Round 1 of high dose 3F8 and it sucked but we are through it. Jackson handled it well according to the doctors. I’m not sure who it was worse on Jackson or Meredith and I. Low

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Proton – Not an Option

Up to this point we have been exploring Jackson’s radiation therapy at MSKCC and CHOP. CHOP offered proton radiation while MSKCC offered only traditional XRT.  In theory, proton radiation offers an advantage in certain situations as it can spare some

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3F8 Round 1 – Here we Come

Back in NYC for a Sunday night check-in for Jackson’s first round of high-dose 3F8. We arrived at the hospital around 7:30pm after a day of playing at home. We hung out in urgent care for around 2 hours while

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New Gear for 3F8 and Beyond

Jackson had surgery at Yale to put in a med-a-port for his future treatment.   This is a much better option than Jackson’s previous broviac.  The port is all internal and as a result he can take baths, showers, and go

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Decision Made – Pizza Time!

After much intense data scrutiny and soul-searching, we have decided to pursue Jackson’s treatment at Sloan.  We are skipping cheese steaks and transplants and heading to NYC for some pizza and 3F8! From a purely risk-adjusted mathematical basis, MSKCC and

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No Evidence of Disease – FUCK YOU CANCER!

Today we received final confirmation from MSKCC that all of Jackson’s tests and scans came back negative.  He is officially cancer free!     FUCK YOU CANCER!        We still have some big decisions to make this weekend

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Cheesesteaks or Pizza for a Month?

Big decisions need to be made this week – pursue a stem cell transplant at CHOP or skip it and pursue treatment at MSKCC. CHOP – Cheesesteaks in Phili? Today we setout to learn more about the CHOP option.  We packed

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Going to CHOP…whoops…not so fast.

Jackson had his weekly clinic visit this morning to have his numbers checked.  While he was at clinic, his broviac tore while they were flushing the line.  This would have been no big deal if the hospital had a repair

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