Yearly Archives: 2012

3F8 Round 2 – The Boys are Back in Town

Jackson and I returned to NYC on Sunday night after a full day of playing at the house while Meredith and Cody remained at home to hold down the fort. We attempted to avoid the 2 hour wait in urgent

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Jackson’s a Big Brother – Welcome to the Madness Cody Flynn

Jackson became a big brother today! My sister and brother in-law were nice enough to come to CT to watch Jackson while Meredith and I headed to the hospital to induce Jackson’s brother.  After a lot of waiting around, Cody

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Swinging at Compo post 3F8

We arrived back home around 4:30pm on Saturday. Jackson is doing great. Most of the pain medications have worked their way through Jackson’s system and he is comfortable and extremely active. After running around the house and backyard for awhile,

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3F8 Round 1 – Over and Done

Well…we are done with Round 1 of high dose 3F8 and it sucked but we are through it. Jackson handled it well according to the doctors. I’m not sure who it was worse on Jackson or Meredith and I. Low

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Proton – Not an Option

Up to this point we have been exploring Jackson’s radiation therapy at MSKCC and CHOP. CHOP offered proton radiation while MSKCC offered only traditional XRT.  In theory, proton radiation offers an advantage in certain situations as it can spare some

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3F8 Round 1 – Here we Come

Back in NYC for a Sunday night check-in for Jackson’s first round of high-dose 3F8. We arrived at the hospital around 7:30pm after a day of playing at home. We hung out in urgent care for around 2 hours while

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New Gear for 3F8 and Beyond

Jackson had surgery at Yale to put in a med-a-port for his future treatment.   This is a much better option than Jackson’s previous broviac.  The port is all internal and as a result he can take baths, showers, and go

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Decision Made – Pizza Time!

After much intense data scrutiny and soul-searching, we have decided to pursue Jackson’s treatment at Sloan.  We are skipping cheese steaks and transplants and heading to NYC for some pizza and 3F8! From a purely risk-adjusted mathematical basis, MSKCC and

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No Evidence of Disease – FUCK YOU CANCER!

Today we received final confirmation from MSKCC that all of Jackson’s tests and scans came back negative.  He is officially cancer free!     FUCK YOU CANCER!        We still have some big decisions to make this weekend

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Cheesesteaks or Pizza for a Month?

Big decisions need to be made this week – pursue a stem cell transplant at CHOP or skip it and pursue treatment at MSKCC. CHOP – Cheesesteaks in Phili? Today we setout to learn more about the CHOP option.  We packed

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Going to CHOP…whoops…not so fast.

Jackson had his weekly clinic visit this morning to have his numbers checked.  While he was at clinic, his broviac tore while they were flushing the line.  This would have been no big deal if the hospital had a repair

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Scan Day

Today begins three days of tests and scans at Memorial Sloan-Kettering.  A brain MRI, CT scan, MIBG scan, bone marrow, and urine tests are all in the works.  Jackson has been doing great since this last round of chemo and

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Done and Gone!

Around 5pm today we finished Jackson’s 5th and final round of induction chemotherapy!  ALL DONE!  WE’RE GOING HOME! Jackson did extremently well during this round.  He kept up his energy and wasn’t overly nauseous throughout the process. His weight is up

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Round 5 – Last and Final Induction Round!

Round 5 began today – LAST AND FINAL ROUND OF INDUCTION CHEMO!  FUCK YOU CANCER! Jackson’s number’s rebounded quicker than we expected after he was released from the hospital last Saturday, so today we are heading back to Yale for

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Home Again

Jackson’s numbers are still not all the way back up, but his fever is gone and the doctors decided he was good enough to go! No more drumming at the hospital.  Although, Jackson is getting good!  Drumming We are going home! 

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A Funeral and a Trip to the Hospital

Today was a day of two tales: my mom’s funeral and Jackson’s trip back to the hospital. Jackson was enjoying being home since we were released from Sloan last Saturday.  However, this round has hit him really hard.  Most of

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Nice Seeing Everyone…Wish it was under better circumstances

Wow!  Today was overwhelming…crappy  but nice all rolled together. Crappy because today was my mom’s viewing.  I know my mom is in a better place but I still can’t help feel its too damn early.  On a positive note, my

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When it Rains it Pours…RIP Mom

My mom passed away this morning.  What a couple of crappy weeks! While we were at Sloan, I received an email from my Dad that my Mom was admitted to the hospital on Saturday April 14, the same time that

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Whoops You’re Not Done Yet…

You’re done…no just kidding. Today was the last day of Jackson’s two week hospital stay and we were all looking forward to returning home. Jackson finished his chemo infusion (or so we thought) in the afternoon and we all excitedly

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Round 4 Begins

Only a week after surgery and Jackson is ready for Round 4 of chemo.  It’s still amazing to me that after all his little body has gone through that the doctors are OK with starting chemo so soon…but this is

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Moving on Up!

Well our stay in the step-down unit was shorter than expected.  Jackson did well overnight and they were able to take out his chest tube and remaining IVs this morning.  All that remains is his temp line. The hospital needed

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Escape from Hell!

Well we were finally released from the Pediatric ICU and returned to Sloan.  I never thought I would be excited to return to a children’s cancer floor.  The death and depression in the ICU were just overwhelming for me (at

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Waiting Game

We got transferred from Sloan’s operating room to NY Presbyterians Pediatric ICU for Jacksons recovery on Wednesday evening. So far its been a bumpy ride. Hopefully the rest of the journey will go a little smoother.  Atleast the view is

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Off to NYC – Out Damn Tumor

Off to NYC for surgery and Round 4 of chemo We’ve been waiting for today for awhile. The outcome has a lot of implications for Jackson’s future treatment (stem cell transplant or not / Sloan vs. CHOP).  On Monday and

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Wow! Who knew a kick in the nuts is what I needed?

I really appreciate Meredith letting me get away for a few day but next time I decide to take a 4 day trip, I’m not going to go somewhere they kick me in the nuts for 4 days… I just

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Saturday Night Disco Fever

Today was a fun day. You wouldn’t have known Jackson was here for chemo unless you saw him hooked up to the machine. Jackson woke up this morning in a great mood. He had a decent appetite and we were

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Round 3

Headed off to Round 3 at Yale this morning. This time Jackson is getting two new drugs Etoposide and Cisplatin. The new drugs come with their own side effects and, as we found at the hospital, their own schedule –

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Harvest Time

Jackson’s counts were very good yesterday so the doctors decided to keep him in the hospital last night and then harvest his stem cells today. Disappointing that we had to stay last night but atleast we don’t have to come

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Today was a good day! 50% off…that’s a good deal!

Jackson has been running a fairly high fever all week. As a result, they decided to do a CT scan last night to make sure they didn’t see any infections in his chest and abdomen. The added bonus was a

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Another Rocking Saturday Night at Yale

Well…just like clockwork, Jackson’s fever spiked back up today (approximately 7 days after the start of his last round of chemo).  As a result, we headed back to Yale. We got checked in and had a pizza party in the

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Back to NYC

Went back to Sloan for another meeting with Dr. Modak. Firmed up Jackson’s surgery plans for mid April. But questions still remain about the plan for stem cell transplant and antibody treatment. We will readdress the question after surgery and

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All Done

Round 2 complete. Jackson handled this round like a champ. His energy level and appetite are still great. We are so proud of our tough little warrior. We are all happy to be home again.

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Off to Round 2

Off to Yale this morning to start Round 2 of chemo.  I love Jackson’s gangsta face in this picture!  What you looking at cancer?  Fuck you!

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Phili without the cheesesteaks

After several canceled appointments we finally made it down to The Children’s Hospital of Philadelphia and met with Dr. Rochelle Bagatell.  It was very informative meeting and she patiently answered all our questions for over two hours.  I think we are

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Haircut Day!

Go ahead cancer…try to make our hair fall out!  We beat you to it!  Fuck you cancer! 

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Homeward Bound

Jackson and Meredith finally got released today after spending 5 nights in the luxurious pediatric ward.  Jackson’s fever is gone and his white blood count has rebounded nicely.  Unfortunately Jackson’s hair is starting to fall out due to the chemo…we’ll

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Midnight Express Back to Yale

Jackson’s numbers are at rock bottom today as it’s about a week after his first round of chemo. At this time, he’s very prone to infection due to the very low level of white blood cells. If his fever exceeds

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New Fashion Accessories Arrived

Just received a batch of wristbands to show some support for Jackson. The message is simple…Cancer picked the wrong kid to mess with! Fuck You Cancer!

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Busting Out!

We’re out of here!  Round 1 complete.  Let’s go home!  

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And so it begins…

Today we started round one of Jackson’s chemo at Yale.

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I wish I was back in NYC for some other reason

Today we visited Memorial Sloan-Kettering Cancer Center in New York City.  We met with Dr. Shakeel Modak who is on their neuroblastoma team.  It’s nice to finally talk to an expert on this disease.

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Neuro What?

Uuuummmm….excuse me.  What did you just say?  Neuroblastoma?  What is that? Welcome to the world of pediatric cancer…    

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